She’d pitied Lucas because he had some kind of heart condition. She didn’t sympathise with him, but she had wanted to help him feel bette…
short-story for children
The morning comes and you open your eyes, the light filters softly in around the curtains. You slowly stretch out your body over an exces…
This is a piece I wrote to try and explain what it’s like to live with RSD. It’s a choose your own adventure piece, only you don’t get to choose your own adventure because when you live with RSD, you don’t get to choose much of anything at all! I hope this can help give you an idea of how much of your life is stolen when you are forced to spend every day in excruciating pain. I’m not looking for your sympathy, simply your understanding. To read and subscribe to associated blog updates, please visit: / http://rellacafa.com For more information about RSD please visit: / The Reflex Sympathetic Dystrophy Syndrome Association
There is no use denying / Bad happens to good people too / There is no use in crying / That bad shouldn’t happen to you
I’ve really had to put a lot of effort into learning to accept things over the last couple of years…I suppose this poem is a little about that and a little about extremism…I don’t believe you have to always see half glasses of water as half full or half empty, although logic would have me think if it was originally empty then it’s half full, if was originally full then it’s half empty, but mostly I simply accept that half of the glass is filled with water, for better or for worse, that’s just the way it is and I’ll find a way to work with that much liquid ;) I absolutely believe in having hope and being optimistic about the unknown, I just perhaps don’t feel the need to work myself into a state of denial that doesn’t let me prepare myself for if things don’t go so well. I hope and I dream, but I try not to expect…closed expectation can be very, very dangerous. Expect that things might turn out differently to how you expect them too…lolz…that’s probably the most balanced form of expectation. Perhaps this is a long winded way of saying ‘take it as it comes’? Hope for everything, expect nothing. Read & Subscribe to my blog updates at: http://rellacafa.com
It’s like a constant waiting game / With each and every day the same
Sigh…this is just life with RSD…there are not guaranteed treatments or cures. Sometimes my body flares up in such pain that I can’t even believe I stay conscious and yet there is nothing I can do about it, I cannot take a painkiller and make it go away… I hope that by sharing my story and experiences I can help educate people about RSD/CRPS…suffering from an unknown and invisible disease makes it extremely difficult to get by in a society that judges on appearance. It’s not like having a condition that people understand, like Epilepsy or Multiple Sclerosis. RSD sufferers have to explain their condition constantly, even to the doctors and nurses they rely on and often are met with looks of disbelief and suspicion. Please understand that this is not ‘phantom pain’, this is REAL PAIN, our nerves are firing pain signals constantly, there is just not a known reason for them to be doing that. Please be aware, when you are out there in the big, wide world, that there are medical conditions that you might never have heard of, degrees of pain that you might not understand…just be aware and maybe don’t got ramming people out of your way and stomping on their feet, you might be causing a lifetime of pain. Thanks for taking the time to read this, thank you for listening, by simply listening you have helped my cause…thanks again. If you are interested in learning more about my situation, please subscribe to my blog at http://rellacafa.com
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