Atypical Trigeminal Neuralgia (ATN), or Type 2 Trigeminal Neuralgia, is a rare form of Trigeminal neuralgia, a disorder of the fifth cranial nerve, and or all three branches of the trigeminal nerves. Nerves in Your HEAD!!!
This disease has earned the nickname “the suicide disease,” due to the unfortunate and drastic steps some patients have taken when they have been unable to find any relief. A true torment…
Relief and torment from what?
see my view for full image and message
Collage in full
Pain can fluctuate in intensity from mild aching to a crushing of the skull or burning sensation, and also leading to the extreme paralysising pain, preventing movement or speech.
ATN pain can be described as heavy, aching, stabbing and burning, constant and severe aching, boring, spasming or burning pain. Sufferers have a constant migraine-like headache and experience intense pain through the teeth, ears, sinuses, cheeks, forehead, upper and lower jaws, eyes, and scalp…your face tightens up like Edvard Munch’s “The Scream”…
In adjectives the pain is like having bad tooth ache! GET ME A DENTIST FOR IMMEDIATE EXTRACTION kind of pain. in the head….24/7!!!
ATN is an inflammation, demyelination, and sensitivity of the trigeminal nerve, and can spread throughout the nerves of the body…peripheral neuropathy. Mine caused by enviromental toxicity…nasty chemicals in the body.
ATN is similar to a disguised epileptic fit…..but there are no convulsions just extreme pain.
Bilateral Atypical Trigeminal neuralgia or Facial Pain is a rare neurological condition. It is one of the most painful afflictions known to man..
“This affliction…so so painful in intensity.. drives rational people to the brink of suicide…if not so” …Neurology/ emedicine
If it hasn’t cleared up after 18 months the prognosis is “Guarded” my prognosis!!….fair to poor!!! Glass half full at the moment!!
Mine was diagnosed in May 2006….It slowly progresses..
Treatments can be found here…Relief.
Heart attack, stroke, sleep deprivation and malnutrition have also been reported as by-products of the pain.
It is a test of courage….and SENSE OF HUMOUR!!! and caring Doctors and Complementary Practitioners. Our National health service quote one doctor due to “politics does not support this chronic illness” so much non drug treatment is self funding, like accupuncture which is necessary weekly not for fun but for essential pain control as is Cranial Osteopathy for releasing the cranial bones. It all costs
Nothing above is said in jest….
“Often the test of courage is not to die, but to live.” Conte Vittorio Alfieri
“He who loses wealth loses much; he who loses a friend loses more; but he who loses his courage loses all.” Miguel de Cervantes
“It is courage, courage, courage, that raises the blood of life to crimson splendor. Live bravely and present a brave front to adversity!” Horace
“The weapon of the brave is in his heart.” Anonymous
Below is a video of my experience….I am reluctant to show it from last year in June, having stopped work..
This has been the effect of my life… No acting…Please respect my honesty here ..and baring my soul to a public who may or may not respond favorably!
But I want to draw attention to this particular neurological disease…however my looks do not belie the pain inside. Trying to explain or describe PAIN ..it aint a headache! any doctor will tell you…. even my friends and relatives find in hard. PAIN is invisible…a silent illness. To talk extreme pain makes you a bore!
I am learning skill to deal with this with humour, my art and with support of my loyal friends who crack me up laughing and to know people think of you, as I do them!
We all know the future is uncertain!!! That is normal.
Tim Norman …..job done…OPTIMISM …do enjoy life!
My love to all my UK mates and thanks to all the great folks on RB i have been bantering with.
P.S Dont be scared off I NEVER talk about it. wink xx
I plan to move to France, money allowing and enjoy the arts, culture….