One Breath After The Other
Sigh…this is just life with RSD…there are not guaranteed treatments or cures. Sometimes my body flares up in such pain that I can’t even believe I stay conscious and yet there is nothing I can do about it, I cannot take a painkiller and make it go away…
I hope that by sharing my story and experiences I can help educate people about RSD/CRPS…suffering from an unknown and invisible disease makes it extremely difficult to get by in a society that judges on appearance. It’s not like having a condition that people understand, like Epilepsy or Multiple Sclerosis. RSD sufferers have to explain their condition constantly, even to the doctors and nurses they rely on and often are met with looks of disbelief and suspicion. Please understand that this is not ‘phantom pain’, this is REAL PAIN, our nerves are firing pain signals constantly, there is just not a known reason for them to be doing that.
Please be aware, when you are out there in the big, wide world, that there are medical conditions that you might never have heard of, degrees of pain that you might not understand…just be aware and maybe don’t got ramming people out of your way and stomping on their feet, you might be causing a lifetime of pain.
Thanks for taking the time to read this, thank you for listening, by simply listening you have helped my cause…thanks again.
If you are interested in learning more about my situation, please subscribe to my blog at http://rellacafa.com
One Breath After The Other belongs to the following groups:
All Out Emotion, All Things Poetic, Artistic, Philosophical, Beginner's Expressions, Core [C.O.R.E], Everyday Life, Live, Love, Dream: , Masterpieces: Literary Workshop, Melbourne & Victoria, Self as Other, Something To Say, The Beginner's Corner (profile page must contain photography experience), The Healing Journey, The Word Tree, Unconventional Artistry - 3 per day and WMGIt’s like a constant waiting game
With each and every day the same
It stretches on and never ends
With only pain around the bends
How to keep my mind in line?
How to keep my smile, in time?
A little hope but to be spared
A little hope but better shared
How could I have never cared?
Back before this all began
Back when I wanted to, I ran
I knew not what the future held
Expected a happy, fantasy meld
Until it hit with sudden force
Knocked my entire life off course
Living a half life, in constant pain
Struggling, hoping not in vain
Taking one breath after the other…
It’s like a constant waiting game
With each and every day the same
Karirose
I do not pretend to understand your level of pain and suffering. I do, however, understand the difficulty of having an illness that is not visible.
The poem expresses my feelings perfectly. Well done.
Hayley Cafarella replied
Thanks so much Kari…it’s not just RSD that people are suffering from in silence!
Pain free hugs to you xoxox
Paul Rees-Jones
I know a bit about RSD and it is hell…so I will just say…stay you, be strong…and screw the rest!
Hayley Cafarella replied
thanks mate! Gotta keep on keeping on…or some other such slogan :P
reflector
A very powerful piece of writing ! I hope someone can find a solution for your pain problem.
silverstrummer...
Hi Hayley – I applaude you in every way how you cope with your pain and the lack of knowledge of others …......... it is definately a good thing to write your symptoms down and to show others how it affects you and others sufferers!
I too suffer in silence with a brain trauma received almost 12 years ago …......... it has ended up with me trying to prove to people that it’s there its because we cannot wear a bandage on pain or put it in a sling or even get it plastered!! So it looks like we have to bear with it and be brave.
I too hope they can find a solution to your problem! – David :>))
Earthmonster