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Amberlin Wu's 'I Remember Dancing' by Art 4 ME

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Amberlin Wu's 'I Remember Dancing' by 

My life with CFS was kicked off with a harrowing 3 months of pneumonia. I tried to pretend it wasn’t happening by continuing pre-med classes and dance, only to find myself in bed and in bone cracking pain at every minute I wasn’t in lab or rehearsal. Slowly, piece by piece, I watched the things that made my life mine fall away. Instead, it became doctors that didn’t believe me and living back at home at age 22, wishing my parents a good time when they went out dancing while I stayed in bed. I broke down in anger and tears weekly, trying to cry out the unfairness.

That was 16 years ago. CFS and I have a different relationship now. I realize it has sent my life down a very unusual path, one with relentless suffering, but also one that gives a person a lot of time to think and watch how people live. This horrific disease has given me the opportunity to really put together how and who I want to be, and that, oddly enough, has been precious.

For more about my life with cfs:


shoes, polkadot, dance, dancing, memories, cfs, xmrv


  • Virginia McGowan
    Virginia McGowanover 3 years ago

    superb image and wonderful heartbreaking story Aberlin. hugs From M.E.

  • David O'Sullivan
    David O'Sullivanover 2 years ago

    Hi Amberlin – I hear you, living with cfs, especially at the beginning is constant grieving for what was. I have been down with CFS for a bit over 2 years now and have been getting back into photography again as a way of dealing with it. I am glad you are able to find the good things in life still, I started my website mainly to remind others and myself that life is still beautiful. If you are interested have a look at my profile here and my website at

  • amayap
    amayapover 2 years ago

    This is really cute!

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